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X-WR-CALDESC:Events for G2G Consulting
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DTSTART;TZID=America/New_York:20230515T120000
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SUMMARY:What's Happening in Washington\, D.C.
DESCRIPTION:Join G2G and grIP Venture Studio for a discussion on what is happening in Washington\, D.C. We will focus on policies and funding impacting the economy\, businesses\, startups and entrepreneurs and hear from experts in government. \nSpeakers include: \n\nThe Honorable Christopher Campbell — Former Assistant Secretary for Financial Institutions at the U.S. Treasury and Chief Strategist at Kroll\nChris Oates\, PhD — Two Lanterns Advisory Founder\nLiz Powell\, Esq.\, MPH — G2G Consulting Founder
URL:https://www.g2gconsulting.com/event/whats-happening-in-washington-d-c-5-15-23/
CATEGORIES:Washington DC
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SUMMARY:Congressional Briefing on the Epilepsies
DESCRIPTION:On Wednesday\, May 17\, join the Epilepsy Congressional Caucus \, Epilepsies Action Network\, Epilepsy Foundation\, CURE Epilepsy\, Rare Epilepsy Network (REN) \, DEE-P Connections\, TSC Alliance\, Dravet Syndrome Foundation\, Dup15q Alliance\, Hope for HIE (Hypoxic Ischemic Encephalopathy)\, International Foundation for CDKL5 Research (IFCR)\, Lennox-Gastaut Syndrome (LGS) Foundation\, Admin at Phelan-McDermid Syndrome Foundation\, Ring14 USA\, TESS Research Foundation\, The Danny Did Foundation\, and the Koolen-de Vries Syndrome Foundation to learn about the epilepsies and funding priorities that will improve access to care\, health outcomes\, and awareness. Seizures can happen anywhere at any time. To ensure you can safely assist someone experiencing a seizure\, we will also provide a quick Seizure First Aid training. \nPlease note: this is an in-person event. \nSpecial Remarks by: \nEpilepsy Congressional Caucus Co-Chairs: Congressmen Greg Murphy\, MD and Jim Costa \nSpeakers: \n\nBrandy Fureman\, PhD – Chief Outcomes Officer at Epilepsy Foundation and former Program Director at NINDS/NIH\nEvelyn Gibbs – Parent who lost child to SUDEP (Sudden Unexpected Death in Epilepsy)\nDr. Archana Pasupuleti\, MD – Pediatric Neurology Specialist with the Children’s National Hospital\nAlex Yang – College student with epilepsy\nGabrielle Conecker – Chair of the Epilepsy Leadership Council\, Founder of DEE-P Connections\, and caregiver\n\nFormat: \n\n9:00 AM – Coffee & Refreshments\n9:30 AM – Presentations from clinician\, patient\, caregiver and advocates\n10:15 AM – Q&A\n\nFacts: \n\n1 in 26 people will develop one form of epilepsy\n3.4 million Americans have a form of epilepsy\n100s of different kinds and causes make up epilepsy\n1 in 1\,000 with epilepsy will die of Sudden Unexpected Death in Epilepsy (SUDEP) – the mortality rate is almost twice as high for African Americans\n$28 billion is the annual economic burden imposed by the epilepsies\nNo major advancements in understanding\, research\, care\, and outcomes have occurred due to gaps in research/care collaboration and surveillance
URL:https://www.g2gconsulting.com/event/congressional-briefing-on-the-epilepsies/
LOCATION:Rayburn\, 45 Independence Ave SW\, Washington\, DC\, DC\, 20515\, United States
CATEGORIES:Washington DC
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