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July 16

PAME Congressional Briefing

How a National Plan for Epilepsy will save lives: Honoring actor Cameron Boyce and others who have died from epilepsy

July 16 @ 12:00 pm - 1:00 pm EST

Learn how the National Plan for Epilepsy Act, introduced by Senators Schmitt and Klobuchar and Congressmen Murphy and Costa will save lives and honor actor Cameron Boyce, and the many others who have died from epilepsy. People with epilepsy have a three times higher risk of death than the general population due to preventable causes, including Sudden Unexpected Death in Epilepsy (SUDEP). For too many families, there is no warning and minimal understanding but with coordination across the country on best practices for epilepsy care and for SUDEP prevention, we can save lives.

Speakers:

  • Libby Boyce, Founder, The Cameron Boyce Foundation
  • Dr. Dan Atherton, MD, Associate Professor, The University of Alabama at Birmingham
  • Gardiner Lapham, MPH, RN, Co-Chair, Partners Against Mortality in Epilepsy (PAME)
  • Tom Stanton, President, The Danny Did Foundation

Jul 16, 2025

12:00 pm EST

Free

Virtual Webinar

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